Monday, September 13, 2010

I think Piper may become the new Jack-Jack

September has been affectionately dubbed “The Month from Hell”.  But I feel guilty thinking that, so it’ll be our little secret, okay?

We have three BIG appointments at Children’s in less than three weeks.  Thursday, the following Wednesday, and then the Tuesday after that. 

Wednesday this week is Piper’s bronchoscopy, tracheoscopy, and laryngoscopy, possible ear tubes, and ABR. 

Yikes.  I’m totally freaking out about it.  TOTALLY.  I feel totally guilty because I actually hope that they find something.  I mean, really- if they find out that she does have some kind of stenosis, which seems to be the most likely cause, and it’s minor, then we'll get the “watch and see” orders.  Which I like.  I’m afraid, though, that if that’s not it, they’ll order more things, and that the ultimate result will be scarier than just a narrowing airway.  And by the way?  Hearing that your kid probably has a compromised airway is not exactly fun.  I mean, it’s just breathing, right???

Anyway, back to the point, I’m not in the mood to go on Wednesday.  And to make matters worse?  They called this morning and told me that they won’t get her in until 1:45.  And that my kid isn’t allowed any food or milk after midnight.  “But apple juice should fill her up”.  Yeah.  Right.  That’ll happen.

I had a breakdown to the nurse on the phone as I tried to wrap my head around getting my 13 pound kid to skip TWO meals, in a row, without losing my (or her) mind.  This is my kid who utilizes her calories so efficiently that she can eat like  a 20 pound kid and still only weigh 13 1/2 pounds. 

Yeah.  This’ll be fun.  I’m still mad at them- I’m not sure how they expect us to do this.  I’m hoping that, once we get to the hospital at 11:45, she’ll either be distracted enough to forget, or that she’ll freak out enough for them to do something about it.  Maybe I’ll have the nurses sit and deal with her as she turns into Jack Jack in The Incredibles.jack jack

So, anyway- think good thoughts for us, and our sanity, through Wednesday.  I can’t WAIT for it to be over!!!


  1. Oh dear, that is a lot of appts and a whole lots of oscopies!!!
    We will be praying for you through the next few days and weeks. Hope all goes well and you get some much needed answers.

  2. We will be thinking of you and I know it can all be so scary but you still have a sense of humor. That's the only way to keep us from going crazy. Fingers crossed she does well for all your sake!!