Friday, October 30, 2009
Wednesday, October 28, 2009
Tuesday, October 27, 2009
We worked all day yesterday and for a while today... Piper helped!
We found and cut and traced...
We made a mess--
Sunday, October 25, 2009
Every state has their own Down Syndrome Association (Mile High Down Syndrome Association here in Colorado). They are responsible for outreach, education, and communication for families in the area. And every year, each organization has their Step Up or Buddy Walk. It serves as their largest fund raiser of the year, but it turns out to be a celebration of all things Ds. This year, Colorado's had almost 3000 walkers, and they raised almost $250k. Wow! What a blast we had! It was so fun to see friends and families come out in support of their little ones. This year, we scoped out what it was all about. Be prepared for next year-- we're planning a lot more for next year!
Here are some pictures of day-- we couldn't have asked for a more beautiful day!
Wednesday, October 21, 2009
Tuesday, October 20, 2009
Sunday, October 18, 2009
The bottom sock is a regular legging that you buy at the store. The top one is the one we made for Piper. My mom, sewer extraordinaire, found a website that showed how to make baby legs out of ordinary socks. It took some creativity to make it work (we had to redo some of the steps in order to get them small enough), but Piper officially has her own leggings that actually fit!
How cute is she??? They work SO well, and she's already worn them lots. I figure that they'll work as a second layer of warmth under her little pants this winter. They were really nice at therapy last week-- it gave her something to have on her legs, but my view of her exercises wasn't obstructed by baggy pants. I think that they're easier for her to maneuver in, too, which is also a plus. She moves around and kicks a lot, so I think she needs the protection on her knees. The only hard part is finding socks that will fit. I've found some little tiny girls' knee highs that work really well and don't require an extra seam down the back. So now we're on a hunt for the cutest socks we can find (we figure it'll be a while before the "real" ones are even fake-able for our itty-bit...) and she obviously needs leggings to match her outfits. Oh the joys of having a little girl!
Thanks, Nana, for making them!
Saturday, October 17, 2009
This is my husband, Luke, and me- we celebrated our 7th anniversary this year. We lived in San Diego for a few years while Luke finished his enlistment in the Marine Corps and I finished college. We moved back to Denver, where we both grew up, in 2005. Luke is a software engineer for EMC. I worked for Boulder County until August.
The dogs were forced to take the back seat this spring when we welcomed our daughter, Piper, into our lives. What a blessing she has been! She was born on May 11, eight weeks early. She weighed 3 pounds, 6 ounces and was 15 1/2 inches long. We were so excited to meet her, we just didn't think it had to be quite that soon.
When I was 17 weeks along with Piper, we found out that she had Down Syndrome. While it was a shock, and took some adjusting to, our love for her was never stronger. We had many appointments after that to make sure that everything was going well. At about 26 weeks, Piper was diagnosed with Duodenal Atresia. This is one of the most common issues that kids with Down Syndrome have. It's when the lower part of the stomach doesn't connect to the upper part of the intestine. She had surgery on her second day of life to correct it. Thanks to amazing surgeons, it was done laproscopically (which isn't done many places) even though she was so tiny.
So that's our family (minus the chinchillas in the basement, but they're camera shy). Join us in our journey, wonchya?